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Bipolar Treatment – Breaking Bipolar

It's not my fault. We say it. We think it. We spread it around. It's supposed to assuage our guilt and make others believe we didn't do anything wrong, when maybe we did. But occasionally, someone has a backbone. Not a politician, not a famous person, not a person in a position of power, but your average person that you interact with, they are capable of admitting they did something less-than-perfectly. But never, ever is it a doctor's fault. It doesn't matter what they do, or what they say, it's never their fault. They never make a mistake. They never have a bad day. They never make an error in judgement. They never write the wrong name of a drug down on a script. Never, is it ever, their fault.
One of the myths about mental illness medication is that it is used to control its taker. In other words, by taking the pills prescribed by a psychiatrist you become a pliable, braindead lemming. So, let's take a look at my pliable, braindead, lemming life.
Everyone who has been bipolar, or mentally ill in general, for longer than about a day-and-a-half has experienced failed treatments. We've all had medications that didn't work. Therapy that didn't help. Lifestyle changes that did nothing. And so on, and so forth. In fact, most of us experience months of treatment failure before we find treatment that works for our mental illness. But after years of failure and trying everything you can think of and still being sick, how does one keep going? How do you keep going when mental illness treatment doesn't work?
I talk about bi-polar disorder. As in, two poles - mania/hypomania and depression. The name is extremely descriptive. But as it turns out, there is something in the middle (besides normalcy, whatever that is); it's called a mixed mood episode. Mixed moods possess distinct characteristics of both depression and mania. Mixed moods severely impair judgement and carry a significant risk of suicide.
In January the FDA had a meeting about whether electroconvulsive therapy (ECT) machines should be moved from the most dangerous category of medical devices (Class 3) to the less dangerous Class 2. And the freak outs began. I saw people screaming about how wrong it was and writing petitions and wanting to go to the FDA meeting to voice their opinion. I mostly ignored this issue because, well, I didn't care. I have so many important issues on my plate there just wasn't room for one more. That is until I can across an article in Psychiatric Times by Charles H. Kellner, MD. Kellner explains why the move from Class 3 to Class 2 is important and its possible effect on patients. What if you didn't have access to ECT anymore?
We all have gut reactions to information. It's the reaction when our stomach knots or tumbles, our breathing quickens or stops, our eyes light up or look down. It's the reaction we have before realizing we're having a reaction. And gut reactions around mental illness can be powerful. The problem is, our gut reactions are so often wrong about mental illness and mental illness treatment.
Not long ago a commenter angrily stated he wanted double-blind, placebo-controlled studies for electroconvulsive therapy (ECT) conducted by an uninterested party. Myself, being diplomatic, I didn't say much to that, but really, You've Got to Be Kidding Me. This person clearly has not thought through the ethics involved.
The journey of a thousand miles doesn't begin with a spin class, but everyone knows they should exercise. People should be doing it right now. Me too. We should slowly and calmly step away from the Internet. And most of us even know exercise acts as an antidepressant. Which means if we actually got up and walked around once in a while, we might feel better. But we don't do it. Not the average North American and especially not the average mentally ill North American. How does a person with a mental illness fight that?
Last night I participated in the first tweetup for the Society of Participatory Medicine. In their words, Participatory Medicine is a cooperative model of health care that encourages and expects active involvement by all connected parties (patients, caregivers, healthcare professionals, etc.) as integral to the full continuum of care. Not surprisingly, this is something with which I firmly agree. I believe in patients as active participants in their own healthcare. I say it all the time - the doctors aren't the ones taking the pills, you are. The issue with pushing for patient "participation" is not everyone is capable of wholly participating in their own healthcare. Sick people are busy being sick. They don't have time to read research papers. While some in the tweetup agreed, two notable exceptions occurred: ""too sick"? -why Patient support groups are key took 4 building the 'plumbing'." "One can't be busy getting well & busy being sick at the same time. The patient has to choose." Sounds like blaming the patient to me.
Today I read another article on a reasonable person's assertion psychiatric medication doesn't work. The evidence is thin, they say, and the studies don't always show a meaning difference between the drug and the placebo. According to them, everyone with a mental illness doing better on psych meds is experiencing the placebo effect. OK, so let's look at this for a minute.